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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi all
you know I havent been feeling right, rather down etc plus there is a huge amount of stress here and plus Bernice is up a lot in the night with horrid chicken pox!
Anyway! Now i know why.
I am in a complete flare. I have swallowed 100s of golf balls that have all landed on my joints and then done a lot of mouth to mouth with a Zeplin to puff the rest of me up. My skin is tight with all the swelling, plus some new lumps on my head and nid leg for good measure!
Unable to move at all, had the pillow lifter out and richard moving my legs to help me to the loo- sooo glamourous!
Taken double steroids today, full whack on the morphine. Blood sugar high, blood salts low, inflammation zooming off into the stratosphere....
Never mind!
They dont frighten me the same as they used to and thank God it is the weekend when more help is around. I will be in a weepy mess later Im sure. Stupid crappy RA.
It will pass, please God before monday.
Jenni xx
PS Will take the azothyaprin again at least it doesnt seem to be that!how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 1/5/2010 Posts: 89 Location: Mereworth, Kent
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Quelle horreur Jenni! I suppose it must help a bit when you recognise what is going on and what helps to keep some small control, but still .....this sounds like the pits.
I want to wrap you in dandelion fluff and rest you in a cottonwool nest.
Hope tomorrow is easier
love from
Alison xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Oh jenni, so sorry, its all the worry, chickenpox etc, thank goodness you have help this weekend. I hope you are feeling better by Monday. Take it as easy as you can, and I really hope it gets better for you x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Oh so sorry Jenni!
I loved Alison's idea, to wrap you in dandelion fluff, sounds just what you need.
Hope it passes soon for you.
Lots of love and hugs, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hope things strt to improve pretty soon Jenni, glad u got some help,
heres hoping u will soon feel some softy cotton wooly vibes bringing you a little relief from this situation,
Take care love Liz xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hope the Azathioprine kicks in soon Jenni
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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So sorry to hear this Jenni. Hope little Bernice's spots are calming down a bit. I can't help but feel that it's no wonder you have gone into full blown flare with the amount of stress you have had lately. Please take care and rest and don't rush into doing too much if you feel a little better. Thinking of you as always.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi all
suffice it to say things are a lot worse.
not had a flare like this for many yrs.
have got 24 care in.
going to try and get GP out in morning.
thank you for caring.
jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Oh, poor you, it's just one thing after another. Glad you've got help, and keep that fighting spirit going.
Love Lyn
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 64
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Hi Jennie
So sorry to hear that you are not well. I do hope the 24 care helps and that you can get some rest and start to feel better.
Love Val
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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So sorry for you and will be praying.. Have you been checked for chicken pox yourself?
God Bless,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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So sorry to be reading this Jenni.
Hope you get some relief soon.
Sending you love and gengle hugs.
Paula x x x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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Jenni Is it the Slceroderma kicking in ?As i get tight skin around my face and hands and scalp ...? prayed about your pain christine  The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Sorry it's getting worse Jenni.
Praying that you get some relief soon.
Love and hugs, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Oh Jenni,
I am so sorry to hear this. It is difficult enough without the other complications of a home and family to look after never mind chicken pox and steroids. Jenni, are you safe from the CP yourself in view of the steroid? Hope that you feel a lot better tomorrow.
Take care,
Eleanor x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi all
thanks so much for your kindnesses to me!
to top it all my carer has a tummy bug but my MIL has stepped in at the last minute to help. Richard is off tomorrow.
I am moving easier- definately doing better.
trying to rest as much as I can.
Love
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 585
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Hi Jenni
I am so sorry you are feeling so bad
hope things ease off for you
take care
Mary L
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Rank: Newbie  Groups: Registered
Joined: 12/7/2009 Posts: 9
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Hi Jenni Just read your post and my heart goes out to you I hope today you are feeling a tad better sending you gentle hugs.
Marie xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Has the GP been yet, Jenni?
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi
been in touch with the Gp- going to see consultant on March 15th and in the meantime, upping the azothyaprin.
any more problems be back in touch.
More blood tests in the morning.
bed rest in meantime
Jenni xxhow to be a velvet bulldoser
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